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TOC jingles needed for Makena; I think Flashy's too busy to ask...
Topic Started: Nov 2 2010, 06:35 AM (5,128 Views)
Little Diva
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You're BANNED!
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Sending lots of love, prayers and good thoughts from all of the Divas for all of you.

:jingles: :jingles: :jingles: :hug: :hug: :hug:
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Onelanerode
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Off visiting Candy Cave, be right back.
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Goodness FG, I'm so sorry. I hope this second treatment does the job and Makena has a restful night. Poor kid. :( Tell her many people are thinking of her and hoping she gets better very soon.

Keep us posted as you're able ... and take care of yourself too, OK?

:jingles: :jingles: :jingles: :jingles: :jingles:
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JanM
Off visiting Candy Cave, be right back.
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I'll be praying for all of you. Your daughter is in one of the best children's hospitals in the world, and has the best doctors so I know she'll be fine. Take care of yourself too.
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smorse
Shunnnnn the unbeliever. Shunnnnnnnnnnnnnnnn.
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OH Flashy

I just saw this, massive massive jingles from FL for the little Flash

:jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles:

And you and Mr Flashy take care of yourselves too

:hug: :hug: :hug: :hug: :hug: :hug:
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Jersey Fresh
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Off visiting Candy Cave, be right back.
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All of the FG's are in my thoughts tonight! Here's praying for happy news in the AM!

:jingles: :jingles: :jingles: :jingles: :hug: :hug: :hug: :hug:
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softshoe12
I Visited Candy Mountain and All I Got Was This Lousy Incision
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Just logged on and saw this. Jingling hard for your daughter and your whole family!

:jingles: :jingles: :jingles: :jingles: :jingles:
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tarragon
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It'll be an adventure! We're going on an adventure!
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:jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles:

HUGE, HUGE jingles for the little FG!

:jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles:
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FlashGordon
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thanx guys.... I appreciate the support. even hubby is thankful for the TOC jingles. ;) you guys did a good job when Baby C was coming and so it is nice to have some TOC vibes now too.

things have been really up and down.... she wouldn't speak at all or even acknowledge us talking to her for most of the afternoon, and I got a little panicky but I climbed in bed with her and she seemed to perk up a little this evening. if anyone knows kena, she is basically always "on transmit" as my husband says. she loves to talk. even when she's sick. so the silence that has been going on the last few days is alarming.

she is finally resting quietly. another dose of immunoglubolin at 11:30 so hoping she's feeling much better by morning. The docs and nurses seem happy with her state right now and have stopped coming in every 5 minutes (it is amazing how little rest a patient gets in hospital) so I've had a little time this evening to do some reading and process info. I've got a lot of questions for the doc tomorrow especially regarding the cardio complications that can develop once the acute phase of fever/symptoms ends.

God bless all the nurses out there-- they are great advocates and have been wonderful about tending to the "smaller" things while the docs figure out the big things. they've been very patient and compassionate.

I've been a little bit irritated with the stream of people we've had in and out. A lot of it is necessary as she needs constant monitoring, but we've also had 554375437 med students in gawking at her and wanting to examine her. I know it is a somewhat rare disease but really? can we stop poking at her just because her just because it is something they've "only seen in textbooks."

I've been updating w/what facts I have, when I can on facebook and lots of family and friends are concerned and were asking questions. Hope you all don't mind me ranting a little more openly here, my brain and heart are all over the place at the moment and it feels good to vent a little.

anyway I'm gonna try and go catch some sleep while I can. thanks again to all you guys for the good wishes and kind words!! hopefully I'll have a very positive update in the AM after her next round of treatment.


Edited by FlashGordon, Nov 2 2010, 07:55 PM.
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In The Gate
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We're on a bridge, Chaaaaaaaaarlie!
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I'm so sorry you have to go through this! Major jingles from out in California! :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles:
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Fish Cheeks
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MAJOR jingles for Makena!!!! I'm so sorry you're going through this, FG! A special hug to you, Mr. FG and little Colton, too. :luck: :luck: :luck: :jingles: :jingles: :jingles: :hug: :hug: :hug:
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incentive
Magical Leopluridon
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:jingles: :jingles: :jingles: :jingles: :jingles: :jingles: :jingles: for a good news update and lots of :hug: :hug: :hug: :hug: :hug: too!!
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macmtn
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Owned by an Arabian ghost
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:jingles: :jingles: :jingles: :hug: :hug: :hug: :jingles: :jingles: :jingles: :hug: :hug: :hug:
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MayaTy's Elf
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Weanling
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Oh no! Just logging on and I saw this! Big TOC jingles for your darling Kena! :hug: :jingles: :jingles: :jingles: :hug:
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jillincolorado
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Thanks for the updates, Flashy. Rant away!! I know the support here on TOC is what got Kiltman through all my stuff. It's a wonderful place for support and there are some super savvy medical people here.

I wish you all a peaceful and restful night and much good news in the morning!! :luck:
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DairyQueen2049
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DRAGON BREATH. DRAGGIN' BUTT
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OMG jingles!!!
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